Module 3: Designing Research with Community Stakeholders and a Health Equity Lens
Section outline
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Presented by Paula Fleisher, Roberto Vargas and Saji Mansur

Objectives
After this module, trainees should be able to:
Part 1:
1. Name rationales for, benefits and challenges of community/stakeholder engagement in research.
2. Describe the continuum of engagement, and principles and best practices in community/stakeholder engagement in research.
3. Understand why health equity framing is necessary for health research in general and essential to stakeholder engagement.
4. Recognize their potential to be in solidarity with and/or join the movement for liberation, using research as a tool.
Part 2:
5. Understand how our own, and our institutions’, biases and privileges can influence research.
6. Understand how bias and racism can be propagated by research.
7. Understand best practices for working with populations that are socially and economically marginalized.
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Section 3.1
Principles of Community Engagement, Second Edition, Clinical and Translational Science Awards Consortium(2015) Chapter 2. A textbook dedicated to the principles of community engagement.
CBPR Principles as written by Detroit URC A resource outlining the core principles of community-based participatory research (CBPR)
Stakeholder-Engaged Research for Health Equity: Final Recommendations to Improve Processes and Structures at UCSF (May 5, 2021) A document outlining recommendations from the Accelerating Systematic Stakeholder Patient and Institution Research Engagement (ASPIRE) Project to improve patient and community engagement, health equity and anti-racism, and stakeholder engagement in UCSF research. (Optional)
Section 3.2Smith, J. and Noble, H. (2014). Bias in Research. Evidence Based Nursing. 17(4) 100-01. doi: 10.1136/eb-2014-101946
- This article provides a concise summary of common types of bias in research design.
Ghidei, L., Murray, A., and Singer, J. (2019). Race, Research, and Women's Health Best Practice Guidelines for Investigators. Obstetrics & Gynecology 133(4) 815-818. doi: 10.1097/AOG.0000000000003157
- This article provides insights about how race categories have been misused in women’s health research and offers guidance that can be generalized for research in any population.
Project Implicit - Implicit Association Test - We all have biases we are unaware of. Test out some of your own by taking an Implicit Association Test on one or two topics of your choice and think about how these biases might influence the research process. -
Opened: Monday, August 1, 2022, 12:00 AMDue: Saturday, July 22, 2023, 12:00 AM
First, building on one of the research questions you chose for your module 2 activity (or choosing a new one if you prefer), write a one paragraph plan to engage invested parties (sometimes called stakeholders) to help you test and/or improve the question. For example, who are the invested parties affected by your research question and who would need to be involved in implementing the research that you are proposing to make it successful? How would you gain their trust and partnership?
Second, click on the link to the Project Implicit website and explore your own biases that might be relevant to the research questions you are considering exploring. Write a few sentences about what other components of your research questions that could be subject to bias. How will you address them in the design of your scholarly project?
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Opened: Friday, July 5, 2024, 12:00 AMDue: Friday, July 12, 2024, 12:00 AM