coding and memo PreP

coding and memo PreP

by Emily -
Number of replies: 3

Reading this transcript was a little difficult at first as there were a lot of abbreviations, terms and context that I was not familiar with. Reading through the transcript made me appreciate how it can be important to have some familiarity with the subject matter of the transcript as some layers of meaning can be lost if one doesn’t know the greater setting the interview takes place in. Talking to Sarah and Nika, both family planning fellows, gave better context to the interview, but also likely colored my interpretation based on their feelings and beliefs.

 

One of the themes/codes we discussed in section that was provider fear of counseling patients of who had just seroconverted to HIV. Quotes that I marked with this code included:

“[when] someone is HIV positive or zero converts, family planning providers freak out” line 221-222

“The provider freaked out and said you might have HIV” line 228

“Someone seroconverts and so we’re like “uhhh, I’m sooooo sorry” line 258

The repetition of the words “freak out” was very striking to me as it was very clear in conveying the discomfort some of these providers had with canceling HIV positive patients.

 

This was in juxtaposition to the relative provider comfort with providing treatment for other STI such as chlamydia. Quotes that I marked with this code included:

 “there’s a lot of comfort around EC and chlamydia”

These things seem to be more in the established realm of family planning, where as HIV seems foreign.

 

This fear of HIV may related to how many see HIV and sexual/reproductive health as separate and foreign:

“I started in doing sexual health and reproductive health before I moved on to doing like HIV work” 267-268

 

Some providers felt that their patients didn’t need Prep as they were low risk for HIV. This seems to play in to this feeling that HIV patients are not family provider patients. Quotes that I marked with this code included:

“…who’s the righ candidate? …because, just because getting like chlamydia repeatedly doesn’t necessarily mean that they’re going to acquire HIV” 211-212

“low income urban setting women who want birth control and chlamydia treatment” 202-203

“HIV is not just something that women don’t have to worry about” 276-277

“A lot of our clinics do do rapid testing which is fantastic …they don’t have a lot of positivity in their area…it just not something that going to come up a lot” 324-326

 

Which leads into another important theme that came up around who is a family provider patient? There seemed to be a lot of resistance to seeing men as patients and HIV positive patients. Quotes that I marked with this code included:

“so now you to take that whole (picture? Future?) -- Shift from we do birth control and pap smears to now, you know working with MSM populations” 300-301

“providers who are not used to working with young gay men” 303

 

Some of the resistance to become HIV providers seemed to be around increased resource utilization and lack of familiarity with HIV. Quotes that I marked with this code included:

“doing that in the context of the work that we’re already doing that ask for PreP I think just feels so hard” 205-206

“providers are already taxed, like there are too few family planning providers” 201-202

“call counseling you’re supposed to go through, how to order it – it will take more and more time to just do that one service” 320-321

 

Lastly something interesting that came up was CDC metrics and their shaping of care provided. Quotes that I marked with this code included:

“if you want to get money for HIV form CDC, it’s  MSM. Young MSM of color specifically” 291-292

“funding is tied to how well you get people on LARCs”340-341

“Hiding behind…very thin rouse of trying to like meet whatever the funding requirements were and like not dance too much on the fact like I going to tell you how to live your life even though like living your life is not a CDC deliverable” 393-397

I thought how metric drives care was really interesting and it seemed to generate some of the feelings of resentment against Prep.

In reply to Emily

Re: coding and memo PreP

by Dominika Seidman -

Thanks, Emily, for slogging through a foreign transcript! What I learned from your piece was that it's incredibly helpful to have a team of people read the transcript with expertise in varying areas, so that not everyone is drawn to the same theme/code. However, when reviewing coding in a group, it's important to not let "experts" on the subject matter dominate. If I was ever running a group coding discussion, I'd try and elicit the perspectives of the non-experts first to get a less influenced perspective.

Along those lines, I really liked your final code about funding and metrics. I wouldn't have worded the code as such when I read it alone, but based on your quotes, I think it is definitely there. It's interesting how a new treatment modality that doesn't even yet have very operational guidelines is already getting lumped in with other long-standing metrics and deliverables - I think this speaks more to the woes of the healthcare system in general, rather than PrEP.  

I couldn't really find a code that you described that I disagreed with - rather, each of your codes were well-supported with quotes. I found it particularly striking that you, who claimed you were unfamiliar with the field, picked up on what I think is the essence of the conversation about PrEP: is sexual health part of family planning care, or is family planning only about reproduction? Several of your codes touch on this theme. 

In reply to Dominika Seidman

Re: coding and memo PreP

by Daniel Dohan -

This is a great example of the value of group coding and getting different disciplinary perspectives on the same data. You pulled out some of the same themes quotable quotes as Nika -- clearly working together put you on the same page in many respects. But new and different stuff also came out. There really is a delicate balance to be had between the expert v. novice opinion and perspective. Clearly novice reads and analysis provide new insights that experts may miss b/c they strike the expert as self-evident or old hat. At the same time, novice readers may, at times, just miss the boat entirely. There's no right answer here but it is important to be aware of this dynamic and also to recognize that novices become experts over time. So if you want to preserve those fresh eyes, you sometimes have to add new people to the team.

In reply to Emily

Re: coding and memo PreP

by Sarah Averbach -

Although we didn't get to the point where we formalized our codes specifically, we all seemed to focus on the same salient themes. So, clearly our group discussion helped give us direction. Despite claiming to be a novice, your memo contextualizes the subject matter in a very nuanced way.  I think you articulated well the tensions around expanding "family planning" beyond Chlamydia and OCPs to include HIV diagnosis and PrEP. I can see through this discussion how important it is both to explore a transcript as a group (and perhaps solidify important themes) but also to memo individually to allow for personal perspective in analysis not biased by those around you (especially when other's in your group may already have an opinion about the subject matter).