Training in Practice Based Research TIPR. | Optional additional readings and resources

Module 7.1

Sources of Measures for Use in Health Disparities Research Prepared by the Analysis Core, Center for Aging in Diverse Communities University of California San Francisco https://cadc.ucsf.edu/sites/g/files/tkssra881/f/Sources%20of%20Measures%20January%202020.pdf

Validated Measures for Research with Vulnerable & Special Populations https://consult.ucsf.edu/guidance/special-populations-measures

Module 7.2

UCSF Library guide on Qualitative Research: https://guides.ucsf.edu/QualitativeResearch/Home

Includes links to books, databases, journals, gray literates on/using qualitative methods; reviews different qualitative research methods; discusses ethics of qual research and methods

Leung L. Validity, reliability, and generalizability in qualitative research. J Family Med Prim Care. 2015 Jul-Sep;4(3):324-7.

Provides examples of importance of qualitative research to primary care

Hennink M & Kaiser BN (2022). "Sample sizes for saturation in qualitative research: A systematic review of empirical tests." Soc Sci Med 292: 114523.

Discusses common sample sizes for different types of qualitative research; can provide a general reference point for considering sample size

Carminati L. Generalizability in Qualitative Research: A Tale of Two Traditions. Qualitative Health Research. 2018;28(13):2094-2101.

Discusses ways to improve generalizability of qualitative research

Lingard L. Beyond the default colon: Effective use of quotes in qualitative research. Perspect Med Educ. 2019 Dec;8(6):360-364.

Recommendations of use of quotes in qualitative research dissemination

Bradley EH, Curry LA, Devers KJ. Qualitative data analysis for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007 Aug;42(4):1758-72.

Reviews inductive coding in health services research

Foley G, Timonen V. Using Grounded Theory Method to Capture and Analyze Health Care Experiences. Health Serv Res. 2015 Aug;50(4):1195-210.

Reviews grounded theory in health services research

Hamilton, A. B. and E. P. Finley (2019). "Qualitative methods in implementation research: An introduction." Psychiatry Res 280: 112516.

Reviews use of qualitative research in implementation research

Module 7.3

UCSF Library Mixed Methods:

https://guides.ucsf.edu/QualitativeResearch/MixedMethods
Overview of mixed methods from UCSF Library, including additional references/resources

Harvard Catalyst Community Engagement Program: Mixed Methods Research: https://catalyst.harvard.edu/community-engagement/mmr/

Lee, S. D., et al. (2022). "Application of Mixed Methods in Health Services
Management Research: A Systematic Review." Med Care Res Rev 79(3): 331-
344.

Best practice recommendations for mixed methods research in health services research

Module 7.4

RESOURCES TO LEARN STATISTICS

· https://epibiostat.ucsf.edu/individual-courses

· Essential Medical Statistics: Betty Kirkwood and Jonathan Sterne 2^nd edition

· Medical Statistics Made Easy: M. Harris and G. Taylor 3^rd edition.

RESOURCES TO LEARN STATISTICAL SOFTWARE

· https://stats.oarc.ucla.edu/stata/modules/

· SPSS for beginners:

· https://cpe.ucdavis.edu/course/sas-primer-healthcare-analytics

https://cpe.ucdavis.edu/course/sas-primer-healthcare-analytics

US Healthcare Data available to researchers

Name of Database	What kind of database is it?	Cost?	Website URL
The Pediatric Health Information System® (PHIS)	Pediatric inpatient, ambulatory surgery, emergency department and observation unit encounters	Free for participating centers	https://www.childrenshospitals.org/content/analytics/product-program/pediatric-health-information-system
Vaccine Adverse Event Reporting System (VAERS)	National early warning system to detect safety problems in vaccines	Free	https://vaers.hhs.gov/data.html
Surveillance, Epidemiology, and End Results (SEER)	Tumor	Partially free	https://seer.cancer.gov/
Medical Information Mart for Intensive Care (MIMIC)	Intensive medical	Free	https://mimic.physionet.org/
National Health and Nutrition Examination Survey (NHANES)	Children and adult health	Free	https://wwwn.cdc.gov/nchs/nhanes/
The Cancer Genome Atlas (TCGA)	Cancer genomics	Free	http://cancergenome.nih.gov/
Gene Expression Omnibus (GEO)	Sequencing and gene expression	Free	https://www.ncbi.nlm.nih.gov/geo/
Comparative Toxicogenomics Database (CTD)	Environmental chemicals and human health	Free	http://ctdbase.org/
Biologic Specimen and Data Repositories Information Coordinating Center (BioLINCC)	Cardiovascular, pulmonary, and hematological	Free	https://biolincc.nhlbi.nih.gov/
eICU Collaborative Research Database (eICU-CRD)	Intensive medical	Free	https://eicu-crd.mit.edu/

International healthcare databases available to researchers

Name of Database	What kind of database is it?	Where is it from?	Cost?	Website URL
Global Burden of Disease (GBD)	Epidemic trends and burden of disease	Global	Free	http://ghdx.healthdata.org/
The International Society of Heart and Lung Transplantation (ISHLT)	Transplantation of thoracic organs. Mechanical circulatory assist devices	Global	Free	https://ishlt.org/research-data/registries/ttx-registry
UK Biobank (UKB)	Health-related genetic data and phenotypic data	UK	Partially free	https://www.ukbiobank.ac.uk/
International Cancer Genome Consortium (ICGC)	Cancer genomics	Global	Free	https://dcc.icgc.org/
China Kadoorie Biobank (CKB)	Chronic diseases	China	Partially free	https://www.ckbiobank.org/site/
Paediatric Intensive Care (PIC)	Paediatric Intensive	China	Free	http://pic.nbscn.org/
China Health and Nutrition Survey (CHNS)	Health and nutrition	China	Partially free	http://www.cpc.unc.edu/projects/china
China Health and Retirement Longitudinal Study (CHARLS)	Ageing and health	China	Free	http://charls.pku.edu.cn/

- RESOURCES(1).docx